Reference

Support Groups

Sites

* CINCH: Medical Support Groups
Search the CINCH database for local support groups
* Everybody: Support Groups
Links to a huge number of New Zealand health and disability support groups
* Support Groups @ New Zealand Organisation for Rare Disorders
* Addison's Network
* Agoraphobic Support Group (Canterbury)
* Allergy New Zealand
A voluntary not-for-profit organization supported by a medical and scientific panel of New Zealand's leading Allergy and Immunology specialists.
* Alzheimers NZ
Offers support for sufferers and caregivers and information about the disease.
* Amputees Federation of New Zealand Inc.
* Arachnoiditis Sufferers Action and Monitoring Society (ASAMS)
Support group for arachnoiditis disorder
* Arthritis Foundation of New Zealand
Contains arthritis information, news, treatments and support.
* Association of Blind Citizens of New Zealand
Self advocacy group for blind and vision impaired
* Asthma & Respiratory Foundation of New Zealand (ARFNZ)
Contains information about asthma and asthma drugs; details of support groups in New Zealand and news.
* Asthma New Zealand
* Autistic Association of New Zealand
* Autistic Spectrum Disorder Information Network (ASDIN)
* Brain Injury Association New Zealand
* Breast Cancer Research Trust
* Burn Support Group Charitable Trust
* Cancer Society - Auckland Auckland
* Cancer Society - Canterbury/West Coast Division
Information about the society and its support services.
* Cancer Society of New Zealand
Information about the society; links to society divisions; includes information about cancer.
* CanTeen
The New Zealand Teenage Cancer Patients’ Society
* Canterbury Asthma Society
* Cerebral Palsy Society of New Zealand Inc
* Child Cancer Foundation of New Zealand
Information about the society; includes brief descriptions of types of cancer.
* Cleft Lip and Palate Support Group
* Coeliac Society of New Zealand Christchurch
* Crohn's & Colitis Support Group
* Crohn's and Colitis Support Group (CCSG)
* Cystic Fibrosis Association of N.Z
* Deafblind New Zealand Incorporated
Provides information on the disability of deafblindness, people to contact in New Zealand, members newsletter, and links to sister organisations internationally. DeafBlind New Zealand arose from the need seen in New Zealand Royal Foundation for the Blind for a separate society run by Deafblind people themselves.
* DEBRA New Zealand
Support and research for Dystrophic Epidermolysis Bullosa
* Diabetes Auckland
* Diabetes New Zealand
* Disabled Persons Assembly (DPA)
DPA is an advocacy and lobby organisation, made up of individuals with disabilities, their families and service-providing agencies.
* Dyspraxia Support Group of New Zealand
* Ehlers-Danlos Foundation of New Zealand
* Enable New Zealand
formerly the New Zealand Disabilities Resource Centre
* Epilepsy New Zealand
* Fertility NZ
Fertility NZ exists to help all New Zealanders affected by infertility.
* Fetal Alcohol Support Trust
Fetal Alcohol Syndrome (FAS) is a set of mental and physical disorders that can include mental retardation, brain dysfunction, physical abnormalities, learning disabilities and psychological disorders.
* Haemophilia Foundation of NZ
* Head Injury Society of New Zealand
* Hearing Association of New Zealand
* Heart Children New Zealand Inc.
A support group for children with congenital heart disease
* Hepatitis Foundation
* Hepatitis-C Support Group of New Zealand
* HPV Project
Support and education about human papillomavirus
* Huntington's Disease Association
* IHC New Zealand
New Zealand's largest provider of services to people with intellectual disabilities and their families.
* International Federation for Spina Bifida and Hydrocephalus
The International federation for hydrocephalus & spina bifida (if) is the world-wide umbrella organisation (NGO) for Hydrocephalus and Spina Bifida created in 1979 by national organisations of people with these impairments and their parents. Today IF’s membership consists of National Umbrella Organisations for Hydrocephalus and Spina Bifida in over 40 countries. News, information, human rights issues and support for parents/caregivers and people with Spina Bifida.
* IRONZ New Zealand Haemochromatosis Support and Awareness Group
* Kidney Kids Support Group
* LAM Charitable Trust
Support group for Lymphangeoleiomyomatosis disease
* Learning and Behaviour Charitable Trust
Support group for Dyslexia and Attention Deficit/Hyperactivity disorders
* Long-Term Conditions Network
A place to share ideas and resources for improving chronic care and self management support.
* Lysosomal Diseases New Zealand
* ME/CFS Group (Canterbury)
* Mental Health Foundation
* Migraine Sufferers Support Group
* Miscarriage Support Group
Site provides information, book lists and links for those who have miscarried.
* Motor Neurone Disease Association of New Zealand (MNDNZ)
New Zealand Support group for carers, family and friends of people with MND - Motor Neurone Disease (aka Lou Gehrig's Disease, aka ALS)
* Muscular Dystrophy Association of New Zealand
* Associated New Zealand Myalgic Encephalopathy Society
ANZMES is proactive and busy serving existing members and assisting those who are newly diagnosed, as well as helping those who may only suspect they are sufferers. Their Christchurch group has it's own website
* National Foundation for the Deaf (NFD)
* The National Heart Foundation
Aims to promote good health for all New Zealanders and to reduce suffering and early death from diseases of the heart and circulation.
* New Zealand AIDS Foundation (NZAF)
* New Zealand Attention Deficit Hyperactivity Disorder Support Group
New Zealand's online support group, this site covers diagnosis, treatments, support and services available in New Zealand.
* New Zealand Breast Cancer Foundation
Information and news on breast cancer
* New Zealand CCS
Support, advocacy and services for children and adults with physical disabilities.
* New Zealand Continence Association
* New Zealand Down Syndrome Association
* New Zealand Kidney Foundation
* New Zealand Liver Transplant Recipients
* Obsessive Compulsive Disorder Support Group (OCD)
* Osteoporosis NZ
National organisation established to reduce the incidence of osteoporosis in New Zealand.
* Phobic Trust of NZ Incorporated
The Phobic Trust is a registered charitable trust established in New Zealand to provide specialist treatment, education and support specifically to anxiety disorder sufferers.
* The Royal New Zealand Foundation For The Blind
* Schizophrenia Fellowship of New Zealand
Support group for people affected by Schizophrenia
* Sjogren's Syndrome New Zealand
* Sleep Apnoea Association of New Zealand
* SPELD New Zealand
Specific Learning Disabilities Federation. Support group for Dyslexia and other learning disabilities
* The Stroke Foundation of New Zealand
Information on how to contact local field officers, stroke clubs and support groups, also rehabilitation, preventative education and research.